Result of Member Survey

Dear Member

Here are the results of the survey you were asked to complete earlier this year. The response was very good and thanks to all who took the time to complete and returned the questionnaire. The committee have looked at the results and discussed the possible ways available to them to address the issues raised with the resources available.

Issues Raised

• Members not fully aware of the services offered
• Members didn't know how to access the services
• Services not available in members area

The committee aim to promote A.D.D.E.R. and the services by having posters and flyers printed and put in the clinic as well as (with the help of its members) asking GPs to display the material. The posters are now available and distribution has begun, if you can help with this please let us know.

• An information pack will be produced and sent to all new members
• A new web site has been designed which includes a notice board for all members
• A Diary of events will be issued annually in the magazine and the new web site

The survey also highlighted that although some members were interested in have regular meetings the majority who responded would like the speakers to be medical professionals.

The survey showed the newsletter to be a success.

As stated in the previous magazine Richard Gray the newest member of the committee has agreed to become A.D.D.E.R.'s new editor and will produce a magazine 3 or 4 times each year.

Logisticly it is difficult to bring all the services in full to all areas

• Increased peer support at all Dystonia clinics is needed
• Meetings across the region again need volunteers

Why the difficulties

• The charity has very few volunteers (mainly in Newcastle area)
• Travelling isn't easy for some due to health reasons or other commitments

Conclusion

• All areas will receive the newsletters, telephone support (cost of a local call only regardless of distance) and benefit advice by contacting the office

• Road shows in York , Middlesbrough, Carlisle, Sunderland and Newcastle areas with a medical professional speaker

 • Attempt to encourage volunteers to come forward to host support groups with the support of the committee

• Attempt to encourage volunteers to come forward to offer peer support in Dystonia clinics with support of the committee

The committee aim to address the majority of the issues in the next few months and hope with the help of each other we build on offering peer support and support groups in an area near you.