ADDER Links

Useful websites for people wishing to find out more about Dystonia.

This site aims to:

  • Increase public awareness of dystonia, Parkinson's disease and other movement disorders
  • Encourage and support advanced research of dystonia, Parkinson's disease and other movement disorders
  • Provide effective management and treatment for movement disorders
  • Promote medical and patient education about movement disorders

These dystonia pages are intended to provide information - not to advocate particular treatment options. It is strongly urged that patients do not change treatment without first consulting their doctor.


Advice regarding various benefits including Incapacity Benefit, Disability Living Allowance and Employment Support Allowance.


Care4Dystonia is exclusively focused on the devastating impact of dystonia on patients and their families and the direct medical care being provided to them today.


This site provides information about dystonia and to direct interested persons to other resources.


Facebook is a social networking site which is free to join.

There are several Dystonia groups on the site and several discussion boards which you may find interesting.

Please always take care when using social networking sites and follow the guidelines for online safety and security.


Just Giving is an online tool for  fundraising of which A.D.D.E.R. is a member.

If you would like to make a donation to A.D.D.E.R. then follow the link and simply search for A.D.D.E.R. then follow the instructions for making a donation.


The Letter Llama website is for people who want to have fun by sharing hobbies and interests, those who may have lost contact with friends and family, or just for anyone who wants to build genuine, lasting friendships using the impact and depth of a letter - all with the speed and convenience of email.


This site gives you the opportunity to search for the patient/public versions of NICE guidance by keyword, by health care topic, or by date.  In addition, by clicking ‘show all’ you can access all of the clinical ‘understanding NICE guidance’ documents and all of the public health quick reference guides.  The page also gives the user the option to see other versions of the guidance if they wish, and links back to information on how patients, carers and members of the public can get involved with NICE’s work.


Release Therapies is based in North Tyneside and delivers the following treatments to clients from all over the Northumberland and Tyne and Wear area :-

Vodder Manual Lymphatic Drainage; The Lebed Method exercise programme; Remedial and Sports Massage; Advanced Thermo-Auricular(R) Therapy - Hopi Ear Candles; Thai Foot Massage; Traditional Thai Body Massage; On-site Massage.


The Dystonia Coalition is a collaboration of medical researchers and patient advocacy groups that is working to advance the pace of clinical and translational research in the dystonias to find better treatments and a cure. We can help you:


This site offers support to people living with Dystonia.


This site offers information about the primary features of dystonia, its classification, possible causes, and treatment options. This site also includes a built-in glossary of dystonia terms as well as a Frequently Asked Questions (FAQ) area.